This privacy notice tells you what to expect us to do with your personal information.

Contact details

Email: dementiasingsout@gmail.com

What information we collect, use, and why

We collect or use the following information to receive donations or funding and organise fundraising activities:

  • Names and contact details

We collect or use the following personal information for service updates or marketing purposes:

  • Names and contact details
  • Marketing preferences

We collect or use the following personal information for dealing with queries, complaints or claims:

  • Names and contact details

Lawful bases and data protection rights

Under UK data protection law, we must have a “lawful basis” for collecting and using your personal information. There is a list of possible lawful bases in the UK GDPR. You can find out more about lawful bases on the ICO’s website.

Which lawful basis we rely on may affect your data protection rights which are set out in brief below. You can find out more about your data protection rights and the exemptions which may apply on the ICO’s website:

If you make a request, we must respond to you without undue delay and in any event within one month.

To make a data protection rights request, please contact us using the contact details at the top of this privacy notice.

Our lawful bases for the collection and use of your data

Our lawful bases for collecting or using personal information to receive donations or funding and organise fundraising activities are:

  • Consent – we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.
  • Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:
    • Dementia Sings Out is a registered charity (Charity number: 1186115) that relies on donations, fundraising and community support to provide free singing sessions for people living with dementia and their carers. We have a legitimate interest in collecting and using relevant personal information to administer donations, respond to fundraising enquiries, maintain relationships with supporters and organise fundraising activities. This helps us raise the funds needed to continue providing our services and supporting our local community. We only collect information that is necessary for these purposes and take care to protect individuals’ privacy. We believe the benefits of this processing outweigh the potential risks because the information is limited to what is reasonably needed, used for purposes people would expect and handled appropriately. We respect individuals’ rights and provide clear information about how their details are used. Where consent is required for email marketing, we obtain this separately and provide an easy way to unsubscribe.

For more information on our use of legitimate interests as a lawful basis you can contact us using the contact details set out above.

Our lawful bases for collecting or using personal information for service updates or marketing purposes are:

  • Consent – we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

Our lawful bases for collecting or using personal information for dealing with queries, complaints or claims are:

  • Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:
    • Dementia Sings Out has a legitimate interest in collecting and using relevant personal information to respond to enquiries, investigate complaints, resolve concerns and manage potential claims. This helps us communicate effectively with individuals, address issues fairly and maintain the safe and effective running of our charity. We only use information that is reasonably necessary for these purposes and take care to protect individuals’ privacy. We believe the benefits outweigh the potential risks, as people would reasonably expect us to use the information they provide to respond to their enquiries or concerns. We handle personal information appropriately, limit access to those who need it and respect individuals’ data protection rights.

For more information on our use of legitimate interests as a lawful basis you can contact us using the contact details set out above.

Where we get personal information from

  • Directly from you

How long we keep information

We only keep personal information for as long as necessary for the purpose it was collected, or to meet any legal or regulatory requirements.

Mailing list details are retained until you unsubscribe or withdraw your consent. Enquiry details are kept only for as long as needed to respond and complete any necessary follow-up.

When information is no longer required, it is securely deleted or anonymised.

How to complain

If you have any concerns about our use of your personal information, you can make a data protection complaint to us:

Email: dementiasingsout@gmail.com

If you remain unhappy with how we’ve used your data after raising a complaint with us, you can also complain to the ICO.

The ICO’s address:
ICO Head Office
4th Floor, No.3 Circle Square
5 Hawkshaw Street
Manchester
M1 7BL

Helpline number: 0303 123 1113
Website: https://ico.org.uk/make-a-complaint